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LeDeR Programme

Le4DeR Project Page

The LeDeR programme was established in 2017 to improve healthcare and the wellbeing of people with a learning disability and autistic people.

The LeDeR programme aims to:

  • Improve care for people with a learning disability and autistic people.
  • Reduce health inequalities for people with a learning disability and autistic people.
  • Prevent people with a learning disability and autistic people from early deaths.

What is LeDeR?

Learning from lives and deaths - people with a learning disability and autistic people (LeDeR) was funded by NHS England and NHS Improvement, and established in 2017 to improve healthcare for people with a learning disability and autistic people.

You can read a copy of the LeDeR 2022 Report by clicking this link LeDeR Report 2022 

Previous LeDeR Reports can be found in the FAQ section at the bottom of this page. 

Easy read documents
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Confirm and Challenge Group

People First formed the Confirm and Challenge group to work with LeDeR in 2019. Over the years our group has included people with lived experience, parents/carers and professionals including hospice staff, bereavement counsellor and learning disability nurses. 

We receive reviews of the deaths of people with learning difficulties. We look at these to highlight things that have been positive in their care and experience (Confirm) and things that have been negative or lacking (Challenge). 

We feed back to Action from Learning and LeDeR governance groups, in the hope that good practice and areas for improvement are considered and implemented in the future. Some of our members also sit on the LeDeR Sign off Panel. As of 2022 LeDeR also reviews the deaths of autistic people.

If you would like to contact us for further information on our Confirm and Challenge Group you can email [email protected] or use our contact form here. 

Frequently Asked Questions

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