Some people with learning disabilities rely on the benefits system for support, stability and independence. But right now, that system feels like anything but supportive.
It’s confusing. It’s hostile. And it’s deeply frustrating.
This Learning Disability Week, we’re asking a question that cuts right to the heart of it ‘Will you work with me?’ Because when it comes to benefits - it doesn’t feel like the system is on anyone’s side.
The daily reality
As someone who has worked closely with people with learning disabilities and their families i have witnessed the daily fight. I’ve seen the strength it takes to navigate systems that were never designed with them in mind, and I’ve seen the relief and joy that come when people feel truly seen, heard, and supported.
But we can’t forget the reality. People are sent letters they don’t understand. They face assessments that focus only on what they can’t do. They’re asked to justify their needs repeatedly, even when those needs haven’t changed. Trying to navigate this for some people is incredibly difficult. Doing it alone is often impossible. Families, carers, and advocacy organisations like People First are left picking up the pieces of a system that’s supposed to protect people, not punish them.
And the stakes are high. When things go wrong, people lose income. They lose stability. Sometimes, they lose trust in the system altogether. These proposed cuts don’t just concern me as an advocate; they concern me as a citizen who has shared in the triumphs and struggles of those I support. I carry their stories with me. When policy fails them, I can’t stay silent. It’s why People First will not stay silent.
Scope is calling it out. That’s why we’re proud to stand alongside Scope in their national campaign ‘Support not Sanctions’. Scope is demanding a system that trusts disabled people, rather than threatening them.
They’re calling for:
- An end to the culture of sanctions and suspicion
- Clear, accessible communication in every part of the process
- Decisions made with dignity, not delay
- Long-term reform shaped by disabled people and people with learning disabilities.
Because the benefits system shouldn’t push people to breaking point, it should be a lifeline.
What change looks like
We need a system that:
- Listens the first time: No more repeat assessments for lifelong conditions
- Makes sense: With clear, accessible language and co-designed forms
- Provides proper support: With funded advocacy and real-time help
- Offers stability: Where people don’t fear losing everything if circumstances change.
“I want my son to have future he can rely on. Not a system we have to fight.” Parent.
That’s what someone told me recently. And that’s what we want, too. The benefits system can and should work with people, not create barriers for them to survive.
So, this week, we’re raising our voices to say enough frustration, enough fear. It’s time for a system built on trust, fairness and respect. But will you work with us to make that happen?