"Advocacy support isn’t just about having someone speak for you it’s about having someone stand with you, listen to you, and make sure your voice is truly heard. For me, advocacy made all the difference at a time when I felt powerless and overlooked.
I was in a care home, desperate to return home but struggling to make others understand my wishes. That’s when Megan, my advocate, stepped in. She helped me understand my options, guided me through meetings, and ensured my perspective was respected. With her support, I was able to return home and regain my independence, living happily with my wife."
In this interview, we sat down with Berty to follow up on his experience of returning home after spending time in a care home, a place he had not wanted to be. We discussed how he is adjusting, how he feels about being back in his own space, and the changes this transition has brought to his daily life. The conversation offers insight into his advocacy support, his emotions, challenges, and the sense of comfort he is finding now that he is back in a familiar environment.
What does advocacy support mean to you?
Advocacy support means having someone by your side who helps you speak up when others won’t listen. It’s more than just having a voice; it’s about having someone who genuinely cares about what matters to you, who stands with you during difficult times, and ensures your wishes and needs are heard and respected. Knowing that someone is there to support you brings confidence, reassurance, and a sense of security when facing situations that feel overwhelming.
In what situations do you think advocacy could be helpful?
Advocacy can be helpful in any situation where you feel unheard, overlooked, or unsure of your rights. For me, it was when I was in a care home, desperate to return home but struggling to be listened to. In moments like that, an advocate can make all the difference helping professionals and family understand your perspective and ensuring your voice is not just heard, but valued. Advocacy provides support when you feel powerless, giving you the confidence to speak up for yourself.
What type of support would you find most useful (e.g., someone speaking on your behalf, helping you understand information, being with you in meetings)?
The support I found most useful was having someone help me understand all my options. Before advocacy, I didn’t even know that returning home was possible. My advocate explained the choices I had, guided me through the process, and supported me during meetings to make sure my wishes were clearly communicated. Having this kind of support empowers you to make informed decisions and feel in control of your life again.
How comfortable do you feel asking for advocacy support?
I feel completely comfortable asking for advocacy support. Knowing that there is someone whose role is solely to listen to me, understand my needs, and help me navigate complex situations makes it much easier to reach out for help. It’s reassuring to know that I am not alone when facing challenges that may feel overwhelming.
Can you tell me about a time when advocacy support helped you?
One of the most significant moments was when I was stuck in a care home, wanting my freedom and independence back. Megan, my advocate, helped me communicate clearly what I wanted to others. She supported me in meetings, explained my options, and made sure my family and the professionals involved truly understood my wishes. Because of this support, I was able to return home, where I now live happily with my wife and enjoy my independence. Advocacy helped turn a situation where I felt powerless into one where I could regain control of my life.
What was most helpful about the advocacy support you received?
The most helpful aspect of the advocacy support I received was having someone who genuinely cared about my wellbeing and took the time to explain all my options. Megan’s support gave me the confidence to speak up for myself and make choices that reflected what I truly wanted. Knowing that I had someone on my side made an overwhelming situation feel manageable and gave me hope when I needed it most.
Can you tell me the outcome/impact from your advocacy and how this made you feel?
The outcome was incredible. I achieved the result I wanted I was able to return home and live with my wife, enjoying my independence once again. This experience made me feel empowered, valued, and heard. Advocacy not only helped me reach my goal, but it also gave me the confidence and reassurance that my voice matters and that I have the right to make decisions about my own life.
What do you think makes a good advocate?
A good advocate is someone who genuinely cares, listens carefully, and respects your wishes. They stand by your side, guide you through difficult situations, and make sure your voice is heard, no matter how challenging the circumstances. Compassion, patience, and dedication are what make an advocate truly effective and impactful.
Would you recommend advocacy support to other people?
Absolutely. I would recommend advocacy support to anyone who needs help being heard, understanding their options, or navigating difficult situations. Advocacy can make a real difference in people’s lives, helping them achieve outcomes that reflect their wishes and restoring confidence and independence.
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If you would like to find out more about how our Care Act Advocates can help you, please read our 'Good to Know' guide here.
Care Act Advocacy is free, confidential and independent from health and care services.
If you think you are eligible for a Care Act Advocate, please reach out to your social worker or local Adult Social Care office.
If you have tried to contact your social worker or local office and have had difficulty, please contact us directly and we can help you.
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